Happy Holidays

Dear All,

  Not too much new to report from the Lynch Family.  Mary Cate is still eating and sleeping great and enjoying her home and the visits from family and friends.  Christmas was wonderful and MC8 was spoiled rotten by everyone.  She even got to meet Santa!

This may be my favorite picture of the holiday season...Mary Cate meeting her cousins Claire and Nora for the first time...the smiles and love in this picture are infectious :)

Lynch Family Christmas 2011

 MC and Santa

Over the past couple of weeks, Chris and I have been doing a lot of research on doctors.  We reached out to a family in Austin, TX, Rick and Tayrn Skees, who's son Aiden has Apert Syndrome.  We came across their blog while searching the internet for Aperts infromation.  Surprise, surprise, they even have a south side connection, Aiden's grandmother (Tayrn's mom) grew up in Beverly.  His grandparents were even married at Christ the King Church, only a block away from our house!!!  Here is their website/blog:

www.moreskeesplease.com

Aidan Skees is nearly 4 years old and is dealing exceptionally well with Aperts.   Taryn & Ricky have been incredibly helpful and gave us rave reviews of the doctor they are using for Aiden's surgeries, Dr. Jeffrey Fearon in Dallas.  We have already reached out to this doctor and had a phone consultation.  We plan to head down to Dallas in the coming weeks to meet with him in person.  Dr. Fearon currently has 140 active patients with Aperts and seems to be the foremost expert with this syndrome.  He was very thorough and comprehensive in the phone consult we had, and has a different schedule for surgeries than most we have heard (he does first surgery at 9 months of age).

We still plan on going to all of our appointments and meeting with all of our surgeons at Children's Memorial, but we are also committed to finding the best possible doctors and care we can get for Mary Cate, so we can offer her the best possible life.  Dr. Fearon's website has some great information on Aperts if you want to check it out.

http://www.thecraniofacialcenter.org/apert.html

Well, that is all the news we have for now, thanks again for visiting the blog and for your thoughts and prayers.

We wish all of you a safe, happy and healthy 2012!

Much Love,
  Kerry, Chris and "Queen MC"