Sunday, December 18, 2011

Welcoming Mary Catherine - 12/08/2011

All -

Mary Cate was born at 8:48 AM today, weighing 8 pounds 5 ounces and 22 inches long by c section.  Unfortunately, there were some abnormalities in her hands, feet and cranium and she is currently in the Neonatal Intensive Care Unit.  We spoke with a geneticist and he has given a preliminary diagnosis of Aperts Syndrome.  They are running tests to confirm.  It is totally unknown at this point as to what this will mean for Mary Cate's development.  She could have both physical and cognitive development issues, but the extent of such issues vary case to case and depend on the severity of the syndrome.  There will almost certainly be near term surgery for her skull, hands and feet.

This is obviously very difficult for both of us.   However, we have already made the decision to be positive and optimistic.  We will not feel sorry for ourselves and do not expect that from any of you.  Instead, we will love Mary Cate to the fullest and give her every opportunity at the most normal life possible. .  We are tremendously proud of our new daughter and are thankful to have such a strong support network of family and friends.  As someone close to both Kerry and I just put it: "Mary Cate will be the light of your and everyone's lives".  We couldn't agree more.  

For the time being, we would ask that you hold off on visiting us in person.  We would like to get a handle on the upcoming schedule of tests and procedures before we start having visitors. Thanks to all of you for your prayers, well wishes, and most of all love.  


Kerry and Chris

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